Rare Disease Day Tucson

03/07/2026

Rare Champions!

Every year we recognize individuals who are making an impact on behalf of the rare community. Thanks to Ben's Bells for making a custom “rare” cactus bell.

Thank you to our 2026 Rare Champions!

Nancy Gutierez -AZ House Member District 18
Crissy McGann - PWSA Arizona
Ashley Castillo - Az AE Mama

03/02/2026

School Spirit!

Tanque Verde Elementary School hosted their annual “Show Your Stripes” spirit day for staff and student in honor of Rare Disease Day and to show support for their rare community.

If you are interested in your school hosting a spirit day to support Rare Disease Day in 2027 please send us a message and we can provide support.

02/28/2026

02/28/2026

Flue shots, fun, and more!

Come by the museum today for RDD Tucson!

Thank El Rio Health!

02/28/2026

Rare Disease Day is dedicated to raising awareness about rare diseases and improving access to diagnosis, treatment, care, and social opportunities for the millions of individuals and families affected by rare conditions worldwide.

📍 Tucson Community Event
We’re proud to host Rare Disease Day Tucson — a local celebration and resource event organized by families, advocates, and community partners designed to build support, share stories, and connect people impacted by rare diseases right here in Southern Arizona. The event takes place from 9am - 1pm at the Children's Museum Tucson.

✨ What to Expect:
• Community resources & advocacy information
• Opportunities to connect with other families and caregivers
• Exhibits, activities, and support networks
• Celebrating resilience, raising awareness, and spreading hope

02/24/2026

Join families, advocates, and healthcare champions across Tucson as we raise awareness, share stories, and stand together for the rare disease community.

📅 9am - 1pm, February 28th, 2026
📍 Children's Museum Tucson

02/22/2026

Less than a week until Rare Disease Day!

Join us at the Children's Museum Tucson for a free family event from 9am - 1pm!

It will be "More Than You Can Imagine"

02/21/2026

Thank you to our incredible sponsor and partner team!

This event could not be possible without the support from, Cord Blood Registry, Living Branch Church, Children's Clinics, Rite Way Heating Cooling & Plumbing, Swaim Associated LTD Architects AIA, The Property Partners brokered by EXP Realty, and Tanque Verde Pediatrics

Thank you for making this Rare event possible!

02/21/2026

Looking to "Share Your Rare" this week?

There are many ways to raise awareness, for those comfortable with canva, attached are two links that are editable to add your own pictures and rare disease.

Directions:
1. Click the link and log into Canva
2. Upload your desired picture (if necessary)
3. Drag the picture into the "landscape" until it fits the background
4. Double click the image to crop your picture
5. Edit language
6. Download with the "Share" button (PNG is best)

Profile Pic - https://www.canva.com/design/DAHB7NPFK1g/iQLNw1Yp3eHBHIMz14PFKQ/view?utm_content=DAHB7NPFK1g&utm_campaign=designshare&utm_medium=link&utm_source=publishsharelink&mode=preview

Love Someone Rare Post - https://www.canva.com/design/DAHB7KV6YA0/mYZ6vRO004NY6i0TSZJ2Iw/view?utm_content=DAHB7KV6YA0&utm_campaign=designshare&utm_medium=link&utm_source=publishsharelink&mode=preview

02/21/2026

Thank you Autism Society of Southern Arizona for putting a spotlight on Rare Disease Day!

https://youtu.be/mTPLX3FSLOE?si=EAFztqRcTCzAmRx3na

Families and advocates will gather Feb. 28 to spotlight rare diseases and connect those impacted in Southern Arizona.

02/14/2026

Every rare disease journey is unique, but together we can go further.

On Rare Disease Day we honor the strength of individuals and families in our Tucson community who navigate rare diseases with courage, resilience, and hope.

Stay connect by following on facebook, instagram, or by visiting rarediseasedaytucson.org