BWS Awareness Day

04/17/2026

Pediatric Clinical Quiz

Neonatal Overgrowth & Hypoglycemia | Pediatric Clinical Quiz 🩺👶

This neonatal presentation combines macrosomia, macroglossia, and a specific metabolic derangement. Test your clinical reasoning and see if you can identify the correct syndrome.

A macrosomic newborn male delivered at 38 weeks gestation presents with profound, persistent hypoglycemia shortly after birth. Physical examination is notable for an enlarged tongue protruding from the mouth, a reducible midline abdominal wall defect at the base of the umbilicus, and distinctive linear creases on the earlobes.

What is the MOST likely diagnosis?

A. Congenital Hypothyroidism
B. Simpson-Golabi-Behmel Syndrome
C. Beckwith-Wiedemann Syndrome
D. Pompe Disease

Drop your clinical reasoning and comment A, B, C, or D below! 👇

Disclaimer: For educational purposes only.

04/07/2026

As BWS Awareness Day around the world comes to a close 🌅

This awareness doesn’t end here.

It continues in conversations,
in advocacy,
in support for families around the world.

Thank you for being part of something meaningful 💚💛

04/06/2026

For families living with BWS—
this isn’t just one day.

It’s appointments, monitoring, advocacy, and love.

Awareness Day helps the world pause and see what is lived every day 💚💛

04/06/2026

Today, we’ve seen voices from around the world come together 🌍💚💛

Every share.
Every comment.
Every conversation.

It all matters.

Thank you for being part of bringing awareness to Beckwith-Wiedemann Syndrome 💚

04/06/2026

One of the most important things to know about BWS:

Early monitoring saves lives.

Simple screenings in childhood can detect risks early—
and change outcomes completely.

Awareness isn’t just information—
it’s protection 💚

04/06/2026

Even though Beckwith-Wiedemann Syndrome (BWS) is rare—
affecting about 1 in 10,000 births worldwide—

that still means thousands of families across the globe 🌍

And with IVF, the likelihood is higher.

Rare doesn’t mean small.
It means often unseen.

Let’s change that 💚💛

04/06/2026

Did you know?

Children with Beckwith-Wiedemann Syndrome (BWS) often need
regular tumor screening in early childhood.

This may include:
• Ultrasounds
• Blood tests

Early monitoring can detect risks sooner—
and save lives 💚💛

Awareness makes this possible.

04/05/2026

BWS Awareness Day is moving across the world 🌍💚💛

Join in—where are you from? 👇

Share. Wear green & yellow.
Spread awareness online + in your community.

04/05/2026

✨ Awareness moves across the world—because of you.

BWS Awareness Day is moving across the world 🌍💚💛

Starting in Samoa, and flowing through:
New Zealand 🇳🇿 Australia 🇦🇺 Asia 🌏
The Middle East & Africa 🌍
Europe 🇪🇺 UK & Ireland 🇬🇧
South America 🌎
Eastern & Central North America 🇺🇸
and ending on the Pacific Coast 🌅

A wave of awareness is building—one voice at a time.

No matter where you are, you can be part of it.

Simple ways to participate:
💚 Share this post or create your own
💛 Wear green & yellow
💚 Start a conversation
💛 Support a family or organization
💚 Spread awareness online and in your local community

Drop where you’re joining from 👇
Let’s fill this space with voices from around the world 🌍

Together, we make Beckwith-Wiedemann Syndrome visible 💚💛

04/05/2026

ALSF supports the BWS community through childhood cancer research and BWS specific research.

Your donation makes a direct impact.

$50 = 1 hour of research

🎗️Share this post to raise awareness during .

April is National Cancer Control Month, a time to focus on improving survival rates for children with cancer.

The facts:
🍋Childhood cancer is the leading cause of death by disease in children in the U.S.
🍋 10–18% of childhood cancers are linked to an inherited genetic predisposition.

Advances in genetic testing are helping doctors identify cancer risks earlier—so families can get the monitoring, prevention strategies, and care they need.

🍋Most families don’t know until after diagnosis that their child has a predisposition. Alex's Lemonade Stand Foundation-funded researchers are working to change that by studying how early screening could make a difference: alexslemonade.org/where-money-goes/research/newborn-screening-early-childhood-cancer-predisposition-syndromes

This month, let’s continue to spread awareness, support families, and fund the research needed to treat childhood cancer more effectively.