Westbury Open for Rett Research

04/06/2026

Support a meaningful local cause while gaining valuable visibility in the community by sponsoring the 4th Annual Westbury Open Charity Golf Tournament. As a registered 501(c)(3) organization, 100% of proceeds from this event directly support Rett syndrome research efforts, helping advance treatments and improve quality of life for those affected. Sponsorship provides a great opportunity to showcase your business, connect with local leaders, and demonstrate your commitment to making a difference. Gold and Platinum sponsors receive prominent recognition both before the round and during the post-tournament dinner, along with valuable participation opportunities such as golf foursomes and on-course signage. Partner with the Westbury Open and be part of a growing community dedicated to driving progress toward a cure. ⛳

04/01/2026

No April Fools pranks here! Registrations for the 2026 Westbury Open are now LIVE! Please visit www.westburyopen.org to Register a team or for Hole Sponsorships. If you would like more information on higher tier sponsorships or business bundles that include teams and sponsorships, please contact [email protected]

03/30/2026

We'd like to wish our title sponsor, Kelly Warren Kelly Warren-Warren Roofing, a VERY happy birthday!!

This great event isn't possible without the kindness and generosity of you and your family!

We hope you have a fantastic day!!

03/02/2026

Our website version 2.0 is LIVE! Thank you to Richard Lahaie for getting us up and running!

Be sure to check the new look out at www.westburyopen.org ! Registration coming soon!!

Join the Westbury Open charity golf tournament supporting Rett Syndrome research. August 22, 2026 at Tiburon Golf Club, Omaha, NE.

01/12/2026

More Details to Come, looking forward to hosting another fantastic event for Rett Syndrome Research.

08/26/2025

This is what it's all about. Over $13,500 raised to cure Rett Syndrome! We can't thank you all enough for your your support these past three years! We're looking forward to making 2026 a great event with you too!!

Photo credit to the wonderful Nya J Photography

08/23/2025

Huge thank yous to Nya J Photography for coming out and capturing the events of the day perfectly!

Thank you to Hiland Dairy and Leonard Management and their Omaha McDonald's locations for your continued support.

And thank you to Cody Gengler and Bonnie Gengler and their incredible kids Peyton and Piper. Without this amazing family this event wouldn't be a thing!

08/23/2025

The Third Annual Westbury Open for Rett Syndrome Research is off and running! Thanks to everyone for coming out!!

Special thank you to Kelly Warren-Warren Roofing for once again being our title sponsor! Thank you as well to International Rett Syndrome Foundation and Acadia Pharmaceuticals for being here to support all the families affected by Rett Syndrome who came out to spend the day with us! 💜💜💜

04/02/2025

It's that time of year again. Hopefully everyone stays safe and hail free. However, if you do get hail or need to have your roof looked at, please make sure Kelly Warren-Warren Roofing is your first call!

Not only do they do an amazing job of taking care of you and your home, this event would not be possible without their generous ongoing partnership. Let Kelly and his team take care of you like he helps take care of the Rett community!

A severe thunderstorm watch has been issued for parts of Iowa, Kansas, Missouri and Nebraska until 3 AM CDT

03/14/2025

We are so excited to open registration for our 3rd Annual Westbury Open on August 23rd at Tiburon Golf Club. Come join us for a great day of golf and help a fantastic charity effort. Once again all proceeds go towards Rett Syndrome Research Efforts. Teams can sign up at www.westburyopen.org

For our fantastic business partners looking for a great local 501c3 charity to support, see our list of sponsorship tiers and opportunities.

12/23/2024

As we all get ready to spend time with family this holiday season, we all continue to be very grateful for each and every one of you who are helping to continue Rett Syndrome research and care for those girls and families that are living with Rett.

2024 has seen continued advances and good news from the medical community as they work towards a cure. Unfortunately, one brave girl had an adverse reaction to the method of delivery for one of the therapies. While it was not to the actual Rett treatment portion of the therapy, there is still a family that will not have their little girl with them this holiday season. We ask that you please keep that family in your thoughts and prayers as you enjoy all the blessings of the holiday season.

From each of us with the Westbury Open and our families to you and yours, we wish you all the love, warmth, and joy that the holidays brings and we look forward to an exciting 2025 ahead!