Stacie - Fischer Carone polycystic LIVER Transplant

Stacie - Fischer Carone polycystic LIVER Transplant I have polycystic kidney/ liver disease. I need a liver transplant & a kidney transplant. My bloodtype is O+. It would be a couple hours here n there every week.

I've have 1/3 of my liver removed oct-19, along with many cysts, looking for donor that is truly active/interested about donating. Always could use help.... need a driver, help getting up, doing basic day to day, laundry, preparing meals, making sure meds are ready daily, grocery shopping, ect. This wouldnt be a job by the hour or full time, I cant afford to pay like that. If your interested, please contact me! my # & email are listed. blessed day!

Lazy day today. I don't mind, my kidneys are screaming anyway   Got a follow-up appt with my primary doc this Tuesday. T...
01/21/2023

Lazy day today. I don't mind, my kidneys are screaming anyway
Got a follow-up appt with my primary doc this Tuesday. The staff love to see Indie as much as Indie loves them! Lol
Not much going on this weekend for me, watching Netflix lol
Sending out good vibes & prayers to my aunt & my friend. Love you guys

I know its been awhile. I've been under the weather, well I blame the weather lol. It was 74° one day then 24° the next....
11/26/2022

I know its been awhile. I've been under the weather, well I blame the weather lol. It was 74° one day then 24° the next. I have a severe case of bronchitis, so my asthma is really acting up. It's been 2 weeks of this, but its getting a tad better everyday.
We lost a very dear friend of mine last night, my prayers go out to the entire family/friends. May you r.i.p. Robert.
Hope everyone had a good Thanksgiving & has a good weekend.

It has cooled way down but beautiful. Fall colors are starting to change & it's just beautiful.   I'm still hanging in t...
10/04/2022

It has cooled way down but beautiful. Fall colors are starting to change & it's just beautiful.
I'm still hanging in there, nothing new to report on my health, still having alot of pain & swelling, but I hide it well.
Prayers for my friend who caught covid last week, she's getting better but it's the "lingering" part that takes time to pass. I remember back in 2019 the fever, tiredness & congestion was bad & took about 2 months to leave my body. We didn't know it was covid back then, but I know it was.
Took Indie for our walk today, then we went to her favorite store to see her pals, she was so excited to see everyone, well 2 weren't working today, hopefully we can catch them tomorrow 😀
Hope everyone has a great evening!

I wasn't feeling great this morning, but my motto is "walk it off Stacie" lol.   I took Indie for a walk & then we went ...
09/16/2022

I wasn't feeling great this morning, but my motto is "walk it off Stacie" lol.
I took Indie for a walk & then we went to Verizon. I had to get a new phone. I didn't get a top of the line or anything, but the prices, wowsers! I've been trying to sign into apps & trying to remember passwords for hours now! I'm over it lol, I'll try again later lol
It's getting chilly out, but a heat wave is coming this weekend & part of next week.
I had to get another refill of the ulcer medication, dr was hoping it would clear up in 6 weeks, but it hasn't yet. I hope they heal soon!
Congrats to my niece on her wedding & my other niece on her graduation. And happy birthday to my Aunt, & few friends. Miss you all!
Hope everyone has a great weekend!

Today was beautiful. 83° 🌞. Took Indie for a walk & lost an earring. Hoping I'll find it one day lol   Then we went to t...
09/10/2022

Today was beautiful. 83° 🌞. Took Indie for a walk & lost an earring. Hoping I'll find it one day lol
Then we went to the $1.25 store, got a grad card for my nieces grad party tomorrow.
Then I came back here to the house I pay rent at, my roommate wanted to go to the grocery store, so we picked up a rotisserie chicken & ribs for dinner. Indie made her loving intentions to everyone there, she knows everyone that works there. They call her the "Hollywood" dog lol. The store is called Hollywood Market. I even got a happy birthday from the door greeter. He loves Indie & always gives her treats or gives me bottle slips to buy her treats lol
Very much appreciated!
I bought myself a blueberry muffin & have a candle to make a wish lol
I did get to talk to my son real quick this morning & a few other people wishing me a happy birthday 🎂
And I thankyou all for that.
The moon was gorgeous & full last night. My phone couldn't get a good pic of it, maybe next time
Hope everyone had a great day & great weekend

I know its been a minute since I last posted, but I'm not sure I like the revamp of FB, I'm not real savy with computers...
08/17/2022

I know its been a minute since I last posted, but I'm not sure I like the revamp of FB, I'm not real savy with computers as it is lol. Anyway, after I seen the 2nd opinion doctor, I realize no one is going to do anything but harass me for more payments to pay my medical bills. I can honestly say that I've been making monthly payments for over 2 years to Henry Ford. I've never missed a payment. However, Henry Ford still sent them to collections and the collectors are calling my phone constantly & mailing me crappy letters wanting me to pay more. I wrote them back and told them no, I already pay monthly & your not getting more, so they are still on me.
I feel really crappy today. My back is really sore to. I'm going to try to take my daily walk with indie, might be cut short if this pain doesn't calm down.
I throw bread outside for the birds & some turkeys came thru the yard, indie saw them before I did & scared them away. But they got to eat a bit lol
Its looking beautiful outside today. Got a taste of fall last weekend & nights are cooling down, but I can still here the crickets & see lightning bugs. I do love summer time!
My niece is getting married next Saturday, I can't wait for that.
Hope everyone has a really nice day! Namaste

I haven't been doing much since I got out of the hospital. Still have alot of pain in my entire abdomen down to my belly...
07/23/2022

I haven't been doing much since I got out of the hospital. Still have alot of pain in my entire abdomen down to my belly button.
I picked up my new scripts. Protonix & sucralfate. I believe the sucralfate is giving me side effects of extreme nausea, I have pills for that, but it comes on real quick, to quick.
I didn't end up going camping this weekend, those plans got changed at the last minute. I guess its just a lazy weekend of tv.
The weather has been to hot to walk Indie, and I'm not really feeling up to it.
Ok, so I know no one has asked, but I did have my appt with the surgeon. Being im known as high risk already, the surgeon explained that the last surgery was extremely difficult for him, & its only been 4 months. The wrap segment loosened up & my stomach moved back up, the liver is right up on it, the hernia is back & ulcers are giving me the bad heartburn. Doc believes if we redo the surgery right now, and I do need it, I would not make it through it. I'm to high risk, my liver is a problem, & the surgeon doesn't want to be the one doing it. He politely asked me to go to someone else. He explained his personal and professional opinion, what would be involved & the outcome in detail. I understand but really bummed that I have to stay miserable and in pain like this, and I lost a very good surgeon, but Doc said he'd refer me to another thoracic surgeon, but I have to start all of the nightmare testing all over, which takes months. I'm not convinced he'll find someone willing to help me, NO ONE WANTS TO. Its a sucky feeling when people just leave me. At least this guy had the guts to say it to my face unlike other people.
I do have a pain mgmt appt this week, I'm not counting on them to help me to much. They will probably refill my script & send me away. They're another one that doesn't know what to do with me, but sure do insist I come in person (in my condition) to bill my insurance. Thats a quote from the nurse. "Putting me back on the video appt doesn't pay them enough".
I'm very tired, I think I need a nap lol. Hopefully its a short one for its my Saturday movie night lol.
Prayers to my friend Brian, sorry I can't be there with you, but your in my thoughts & prayers.
Hope everyone has a great & safe weekend.

Another gorgeous day. It was cloudy all day, the sun popped out just as I took Indie for a walk. I didn't make it to far...
07/16/2022

Another gorgeous day. It was cloudy all day, the sun popped out just as I took Indie for a walk. I didn't make it to far today. The pain is just to much, got nauseas & I'm out of breath.
So last night I was curious about my test results from the barrium swallow test & they came in. There is evidence of failed Nissen fundoplastication with partial unraveling of the wrapped segment with a small herniation of stomach above the fundoplicated segment. The wrap appears to be partially above the diaphragm. Some contrast is seen filling the wrap. Additionally there is reflux in the contents within the herniated segment. I'm going to assume this is why I'm having so much pain. I already sent a message to the surgeon, hes real good about calling me within a couple days. I'm also assuming I have to go back in to get this all fixed. Please send me prayers/good thoughts!
I'm so fatigued right now, I'm going to lay down. Hope everyone has an awesome weekend. Namaste

It was gorgeous out today. Looks like its going to rain now. But Indie & I went for our daily walk & Indie wanted people...
07/13/2022

It was gorgeous out today. Looks like its going to rain now. But Indie & I went for our daily walk & Indie wanted peoples attention today lol. We saw a gentleman sitting outside, Indie had to go say hello lol. Then she got a small toy off the shelf in cvs lol, started tearing it apart right there in check out line, I assumed it would only be a couple bucks for this toy, it was $6.29!!
A customer walked up to me and kindly asked if that was all I was getting & handed me her $1 reward coupon to apply to Indies toy! I was very grateful! Then Indie walked with her new toy in her mouth out to my car 😆 🤣
Later on, we went to the grocery store for dinner stuff, Indie saw one of her favorite people there, a young man that just loves Indie to death, Indie saw him and leaped across my car & started whining lol. I love how my dog has so much love to give to everyone.
I had a dentist appt today, I guess they lost power & have to postpone my appt to a later date. No biggie, just a teeth cleaning. But tomorrow is the barrium swallow test at Detroit Henry Ford. I'm going alone, usually I bring Indie, but I guess this will be a long process & I know how I get when I start drinking the yuck. Indie would try to jump up in my lap to help me when I start gagging. So I decided to just go alone.
I also got a call about getting "meals on wheels". I didn't think I would be approved, but they are starting my meals this Thursday! I guess I have to have heart diet food though lol. Again, not a big deal, I'm just grateful for getting accepted.
Full moon is actually at 9am tomorrow, and I probably won't get to see it tonight because of the storms coming.
In that note, I'm going to get ready for bed since I can't eat or drink anything after midnight & getting up real early for this appt.
Hope everyone stays safe & has a great evening. Namaste

Roomy & I went & did laundry today. It was extremely humid & I was already not feeling well, nauseous, & headach. When w...
07/09/2022

Roomy & I went & did laundry today. It was extremely humid & I was already not feeling well, nauseous, & headach. When we got back, I made my bed, took a shower & put some clothes away. I sat down on my bed & fell asleep for a couple hours. It rained, cooled down & my headache is dull. Took a few of those nausea pills today, they do work, not sure what my problem is though.
Went to do the ultrasound on my kidneys, bloodwork done on kidneys and liver a couple days ago, seen kidney doctor yesterday. I know no one asked, but I want to share my results, it wasn't all terrible lol
My kidney function is at 48%, holding there for the last 6 months! The jynarque seems to be working, my liver function doesn't seem to be affected so far. Were taking the jynarque to the last level, meaning the highest dosage. My creatine level is high. My kidneys are of greasize, but were not sure if there was any change in the last 6 mo for the ultrasound didn't have those measurements.
I've been extremely fatigued lately, a bit on the down side to. But its the weekend, hope I can stay up to watch movies lol
Hope everyone has a great & safe weekend
Namaste

It was a gorgeous day. About 81° & sunny. I heard some fireworks, but not like usual. This year I barely heard any withi...
06/30/2022

It was a gorgeous day. About 81° & sunny. I heard some fireworks, but not like usual. This year I barely heard any within the last few weeks.
I had a dr appt with pain mgmt today, my xray results came in, still have the same problems, and arthritis on my spine. My hips are ok though. Then I got a call from the surgeon that did my esophagus & stomach. He really sounded bummed out that my heartburn came back, so he's ordering more tests. I got that call today to, its the nightmare test, barrium swallow test. I don't want to do it. It seriously gives me nightmares. But we have to make sure the wrap didn't come undone, or hernia, which I believe the hernia is back, I can see/feel it bulging in the same spot as before. I don't have a date for the test yet, but I'm sure I'll find out tomorrow. I have an ultrasound on my kidneys next week, & kidney appt.
This cool looking dragonfly has been hanging around, I love its wings
Happy birthday to my grandma Lupy. I did call, it was pleasant to hear her voice, short conversation, but nice to chat.
Hope everyone had a great day. Be safe

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