Walk For The Breathless

09/16/2017

It's a beautiful morning, and the air-quality is good, and the walk is today! The walk opens at 11 AM and will go throughout the day until 5 PM. We hope to see everyone there! If you have any questions, please let me know! 208-512-5625

09/16/2017

Shirts, goody bags, and prizes are all ready for tomorrow! Walk starts at 11:00 in Silver Mountain parking lot (unless the air quality is poor in which it will be moved a block away to the KSD Community Center). Don't worry if you don't know where to go.. there will be volunteers to direct you. See you all in the morning! 😁😁

09/14/2017

The walk starts at 11AM, not 9AM. I am sorry for any inconveinence!😊

09/10/2017

There is only 6 more days until the walk! You are still able to sign up, but the price has gone up to $40! We are beyond excited about how everything is coming together! We will see you then!

09/07/2017

There is only 2 more days until early registration is over!! If you would like to register online, go to eventbrite.com and search for Walk for the Breathless. The cost is $30 until the 9th! After the 9th, the price goes up to $40. This includes a T-Shirt! We hope to see you all there!

Eventbrite - Discover Great Events or Create Your Own & Sell Tickets

09/04/2017

Have you signed up for The Walk yet? It's coming up soon and early registration ends on September 9th! It costs $30 per person and you will receive a T-Shirt with it! If you do not register until after the 9th, the price goes up to $40. The walk is throughout the day, so stop on by at anytime! If you have questions, please talk to Logan Jacobson (208) 512-5625 or [email protected] See y'all there!
(Registration is on the page, you can register online or print off the registration and mail it in)

08/31/2017

There is only 16 more days until the walk!!!! It is not too late to sign up!! You can sign up online, or you can print off the registration form on the page. It is $30 per person! We hope to see you there! If you have ANY questions please let myself, or Rylee know! Thanks!😊

08/16/2017

We officially have 1 month to go until it is September 16th and we kick off this walk! Just as a reminder, the first 20 people that sign up for the walk, will get a prize! And if you sign up at ANY TIME you will be into a drawing to win all sorts of cool things! The price to do the Walk is $30 per person, and this does include a awesome T-Shirt! You have 2 ways of signing up. Online- https://www.eventbrite.com/e/walk-for-the-breathless-tickets-36085853760 or ypu can print off your registration form and mail it in tp us! https://docs.google.com/document/d/1-PFmu-RVjtK47iKbgVUd-7zFAZ7jnQL1vWE-6ETPn4g
If you have any questions, give Rylee a call at (208) 290-2566 or Logan at (208) 512-5625! We are so beyond excited for this!!! 😄😄

Walk for the Breathless: Paper Registration *This form must be mailed in, with a check/cash, by September 9th.* Walk Starts on Saturday, September 16th at 11AM at Silver Mountain’s Parking lot. Name: . Ema...

08/16/2017

Here's the online sign up version!!

This is a walk to help the Primary Ciliary Dyskinesia (PCD) Foundation and the Cystic Fibrosis (CF) Foundation. Every donation will help find a cure for these life-threatening diseases. Come join the walk to show your support and spread awareness for CF and PCD. Here in the silver Valley there are t...

08/16/2017

Thank you Kellogg Pet Medical Center for your generous sponsorship! You guys' rock!

08/02/2017

And this is why we want to make awareness of this disease. We love you Lilly! Stay strong!❤️

This is what Lilly's mom said earlier.
"I won't lie... last night was a little rough for Lilly and I both. Lilly had a pretty good meltdown last night saying things like "why can't I be a normal girl?" or "I wish I didn't have PCD" and "there is nobody like me". I honestly can't say I blame her... it's no fun to feel like you are chained to machines. Shes feeling leaps and bounds better (especially from this time last year), so it's hard for her to understand why all of these treatments and therapies are necessary. She's able to run and play and sing and dance just as she wants to.. not only that, she's doing so with little restriction. This is in large part to the treatments she does every single day.

It absolutely broke my heart to add another machine into her life. I obviously understand the reasoning behind everything and I grasp why this CPAP is so important to her health.. it didn't make it any less sucky. I struggled a lot last night because, although seemingly insignificant, I don't want another thing for my child to battle. Then I take a look at her sleep report, I view her fantastic mood this morning, and I realize she didn't struggle... and that makes me feel better... she got better sleep than she probably ever has, and instead of 15 average events per hour without CPAP (she'd quit breathing that many times on average per hour), she dropped to 0.9 with machine. That 100% helped me get off the pity party train I boarded last night. It's those rough nights that make you thankful for the good days! ❤️"

08/02/2017

So much strength and bravery in this cute little girl💜 we love you lilly!