Scramble for Syngap

04/26/2026

We’re proud to have Cameron Ashley Building Products supporting the 5th Annual Scramble for Syngap as a Contributing Sponsor! ⛳

Their involvement helps move CURE SYNGAP1’s work forward, supporting research that identifies more patients, advances gene-based solutions, and develops treatments for those affected by SYNGAP1-Related Disorders.

Looking to get involved? Explore sponsorship opportunities here:
https://e.givesmart.com/events/N8w/

04/21/2026

A big thank you to RYOBI TOOLS USA for joining the 5th Annual Scramble for Syngap as our Presenting Sponsor! ⛳

Partnerships like this help drive CURE SYNGAP1’s work forward, expanding patient identification, advancing research toward gene-based cures, and developing treatments that improve life for families affected by SYNGAP1-Related Disorders.

Want to support this event as well? View available sponsorships:
https://e.givesmart.com/events/N8w/

03/26/2026

Save the date! Scramble for SYNGAP Returns!

On October 3, 2026, Greer Golf hosts a purpose-driven tournament advancing research for SYNGAP1-Related Disorders.

Hosted by CURE SYNGAP1 and managed by Colorado Under Par, this event brings together golfers, families, sponsors, and community supporters for a focused day on the course supporting patient identification, gene-based research, and treatment development.

What to expect:
• Four-person scramble | 18 holes
• The SYNGAP1 Shot
• Beat The Pro
• Longest Drive (M/W)
• Closest to the Pin (M/W)
• Breakfast, lunch, awards & raffle

Registration and sponsorship opportunities are open.

Learn more: http://cureSYNGAP1.org/Scramble

02/23/2026

01/08/2026

Today on Squawk Box, Becky Quick shared her family’s SYNGAP1 journey and her daughter’s diagnosis. Hearing a parent speak so openly about life with a rare disease on a national platform is incredibly powerful and deeply meaningful to our Cure Syngap1 and Scramble for Syngap community.

Visibility matters. Stories matter. And when families bravely share their truth, it brings awareness, compassion, and momentum to the work being done to advance research and treatments.

We’re grateful for voices like Becky’s and for every family who continues to show up, speak out, and advocate for our children. Together, we are making a difference. ⛳💙

Today, CNBC Squawk Box host Becky Quick shared publicly that her daughter lives with SYNGAP1 and introduced CNBC Cures, a new initiative focused on raising awareness for rare diseases and accelerating progress toward treatments and cures for the 30 million Americans affected.

We are grateful to Becky and her family for their openness and leadership. Visibility matters. Awareness strengthens community, advances research, and brings hope to families impacted by SYNGAP1.

Learn more about SYNGAP1 and the work of CURE SYNGAP1:
👉 https://curesyngap1.org

Related coverage and conversations:
• CNBC Cures initiative announcement: https://curesyngap1.org/cnbc-cures-launch
• CNBC Cures website: https://curesyngap1.org/cnbccures
• Becky Quick shares her family’s journey:
https://curesyngap1.org/cnbcBecky
• CNBC news segment: https://curesyngap1.org/cnbcVideo
• Squawk Pod podcast - The Path with Becky Quick: Life with a Rare Disease 1/8/26: https://curesyngap1.org/squawkpod
• Today Show segment: https://curesyngap1.org/todayshow

CURE SYNGAP1 is proud to stand with the global SYNGAP1 community as we work toward meaningful treatments and a cure.

12/21/2025

Season's Greetings from the Scramble for Syngap team! 🎄
Check out our newest email below!

Not on our email list yet? Fill out the Google Form below to stay connected.

https://docs.google.com/forms/d/e/1FAIpQLSdPM_0-wyrgGrOr4ARfQ41d59LOAfPunX_2Qg00-E7zrFAbkg/viewform?usp=header

As we reflect on this holiday season, our hearts are full of gratitude for each of you who continue to support the Scramble for Syngap and the mission to advance meaningful treatments for SYNGAP1.

10/08/2025

The winner of the Scramble for Syngap’s Totem bike raffle is the Roper Family! 🚴‍♂️💨

Fun fact: this marks the second year in a row that a SYNGAP uncle has taken home the incredible Totem bike! Here’s SYNGAP Warrior Blakelee’s brother, Bentley, about to take off on the Zen Rider for a celebratory spin!

Thanks to our amazing community, we exceeded our raffle ticket goal this year! 💙 Every ticket purchased helps raise awareness and funds for SYNGAP1 research and family support. We couldn’t do it without YOU.

10/05/2025

What an incredible day! Thanks to you, our 4th Annual Scramble for Syngap was our biggest yet! With a record-breaking number of teams and over 100 golfers, family members, volunteers, and vendors joining us on a crisp autumn morning, the energy was truly inspiring.

With donations still coming in, our preliminary numbers have us at $31,000 raised for the SynGAP Research Fund! Even more special, we were joined by 9 SYNGAP1 families and 5 amazing Syngapians, reminding us why we gather each year.

We are so grateful for your generosity, spirit, and support. Events like this would not be possible without you, and every dollar raised brings us closer to treatments and a brighter future for all families affected by SYNGAP1.

It’s not too late to be part of this impact - if you haven’t yet, you can still make a donation at cureSYNGAP1.org/Scramble and help us push that total even higher!

We cannot wait to see you back on the course in 2026! ⛳️

10/03/2025

⛳️ Just 1 more sleep until the 4th Annual Scramble for Syngap!

Tomorrow’s the big day - golfers, families, and supporters all coming together for fun, community, and an amazing cause! Grab your clubs, bring your best swing, and let’s make it a great day on the course!

We look forward to seeing you bright and early! ☀️

10/02/2025

We’re rounding out our final Sponsorship Leaderboard with a very special recognition! 💜

A huge shout-out to the Albrecht Family and the Getbehead Family for their amazing support! Both are SYNGAP1 families, which makes this sponsorship extra meaningful to all of us. Thank you for standing with us, lifting up our community, and helping us keep the momentum going. Together, we are stronger!