FEARless: Shannon's Lung Transplant

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11/22/2022

Hey guys! Just an update: I am doing MUCH better and on oral antibiotics for the pneumonia. Cough is getting better by the day and I have been out the hospital for awhile now!! Hope everyone is doing well!
Happy early Thanksgiving to all, and to all a good weekend! ๐Ÿ’œ๐Ÿ˜„๐Ÿฆƒ

Hey Friends & Family!!Here I am FINALLY posting an update after all of this time...Things have been WiLd these past few ...
11/13/2022

Hey Friends & Family!!
Here I am FINALLY posting an update after all of this time...Things have been WiLd these past few months (to say the very least). Since moving here a little over a year ago, I have had more infections, complications, and acute illnesses than I have in the previous 4 years since transplant COMBINED. (Must be the frigid Minnesota air, huh? ๐Ÿฅถ) Regardless of my personal inability to suck it up and embrace my inner Eskimo, I am (without a doubt) extremely blessed to have my care here and have been proceeding with the Apharesis treatment to stabilize my chronic rejection. While this treatment is doing its job, I have had several bouts of other random issues seemingly one after another, threatening to counteract the work of the Apharesis.
In the past week and a half alone, I have been diagnosed with sinusitis, Influenza A, and now it appears I have been blessed with pneumonia on top of everything else. So, it's back into the hospital I must go for now. I'll be starting IV Vancomyacin (hello old friend) for the bacterial pneumonia, as well as continuing with the IV Cefapime (also a familiar one), which was originally to treat the sinusitis.
Prayers would be greatly appreciated for a quick stay, aggressive respiratory therapy, and that my lungs would not take a permanent hit/unrecoverable decline from this (as that is always my #1 concern).
Happy Sunday y'all!! ๐Ÿ˜Š ๐Ÿƒ ๐Ÿ‚ ๐Ÿ โ„๏ธ โ˜ƒ๏ธ
~Shannon
๐Ÿ’œ๐Ÿ’š๐Ÿ’œ๐Ÿ’™๐Ÿ’œ

Today was my FINAL day of ECP treatment at SCCA!! I am so blessed, appreciate and grateful beyond measure for the fantas...
02/12/2021

Today was my FINAL day of ECP treatment at SCCA!! I am so blessed, appreciate and grateful beyond measure for the fantastic Apharesis unit and their absolutely incredible team!
I will miss you guys for sure...but hopefully this treatment will sustain me for the long haul! I have so much faith and hope that it will.
It's crazy to think that 14 months ago I was told I had about a year or less to live. From July of 2020 to now, my FEV1 lung function has DOUBLED from 33% to 67%!!!
I am at a loss for words how humbled and surreal this gift of new life has been. Even 3.5 years out now I still sometimes can't even believe it.
I feel stronger and better than I ever have.
Special shout out to my INSAELY AWESOME caregivers, support system, and more importantly-family. ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ
Kickin' BOS' ass one breath at a time! ๐Ÿ˜‰

Hip Hip Hooray!It's Apharesis Day!๐Ÿ˜Š๐Ÿ˜†๐Ÿ˜ฌ๐Ÿ˜›๐Ÿค—
10/27/2020

Hip Hip Hooray!
It's Apharesis Day!
๐Ÿ˜Š๐Ÿ˜†๐Ÿ˜ฌ๐Ÿ˜›๐Ÿค—

10/23/2020

Hey guys!! Here is the intro from my book I was talking about in the live feed! Feel free to check it out! :)

Introduction
Our Voyage of Purpose

God has a purpose, a plan, and a direction for your life. He has a reason for you. You are irreplaceable, unrepeatable, and you were created because you were wanted. You are always wanted; both from creation and birth into and throughout eternity. God will never be finished with your existence, and that is because to Him, you are pure treasure. You are His beloved child, and absolutely nothing can change that or take that away. Do not allow yourself to think you are anything less, or that salvation comes with strings attached. We can rest in Godโ€™s promise that could not be further from the truth. You are an incredible masterpiece, with a spiritual significance that could only be crafted and designed by the God of the universe. Your heartbeat is the pulse of His endless grace, and His sovereignty and joy run like strings of quartets through your veins in an endless symphony of unconditional love.
Before you were even conceived, God knew exactly what he wanted to do with your heart and through your life. Prior to your existence, God had planned the places you would go, the people you would impact, and He knew the promises you would pursue. He has climbed the mountain peaks of your journey and formed the paths within the valleys long before your name was spoken. He has gone before you, been there with you, and will never leave you. He knew who His disciples would be, and God has been calling your heart toward His Kingdom impact since the first day you became familiar with the sound. If you happen to be someone who has their vocation nailed on lock down, then that is cause for a highly valued celebration! However, the truth is, that most of us do not.
Maybe you are someone who understands and desires the prompting of Godโ€™s call, but you are unsure where to start or how to carry such a massive privilege. Or perhaps you are someone who knows God has chosen you for greatness in His kingdom, but the enemy keeps tripping you up and you cannot seem to get proper footing? Or it could be that you are someone who has put forth immeasurable amounts of effort but still does not seem to be getting any traction. (I refer to this as โ€œinvisible progressโ€.) No matter where you may be on the spectrum of reaching towards Godโ€™s calling, this book was meant for you if you are reaching.
More than anything, we as believers desire to discover what our Christ-driven calling and vocation is. We crave for our heart to find that knitch where we are maximizing our God-given passions and gifts while simultaneously serving others and glorifying the Kingdom. This is when we are at the place of our highest calling. If you have ever been present in one of these moments, you know it is virtually the best feeling one can experience. That is because we are (within those moments) thriving in the state in which we were created to live, move, and have our being. When God is receiving the glory through us, we become full of the Holy Spirit, and the presence of God is magnified within our being. This is the goal of life on earth.
While everyoneโ€™s Kingdom calling is unique to them, within this book I have highlighted twelve common tools the enemy uses to prevent, deceive, and deter our calling and vocation. I guarantee that as hard as you have been working to succeed towards it, the enemy has been working double-time to keep you from it. Many of these turned tactics are hiding in plain sight, and the enemy passes them off as normal events in our human existence. We are often blind to these forms of manipulation, thinking nothing more and shrugging them off, completely unaware of the progress being hindered in spiritual realms. Meanwhile, Satan is utilizing and flourishing in wicked mastery to keep Godโ€™s light hidden from the world. Every day as the world becomes an eviler and more corrupt place, we are merely reminded that this earth does indeed belong to the Kingdom of darkness.
We are encouraged not be disheartened or afraid of the battles of evil around us. John 16:33 reminds us by the verse, โ€œI have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.โ€ We can cling to this promise of hope and proclamation of power that by the blood, Jesus has already overcome all corruptness and evil. Furthermore, 1 John 4:4 states, โ€œGreater is He that is in him, than He who is in the world.โ€ By Godโ€™s own declaration of His greatness, we can rest in complete peace that He is far greater than any earthly evil surrounding us. And we can have faith that whatever does surround us, God is sure to be surrounding.
My prayer for you as the reader is that your awareness of the enemyโ€™s deceit and trickery will steadily increase. May you be on your guard now more than ever, in tune with the spiritual warfare constantly fighting for your attention and time. In addition, my prayer is that you would guard you mind, heart and soul against these weapons of spiritual warfare. Always be prepared and ready to stand firm in Christ. Furthermore, my prayer for your focus is that you might choose to incline your heart towards the urgency and realness of the impact the enemy holds on your soul. And lastly, I pray that the Spirit will help you take in even just a fraction of what I poured out in writing this book. I desire immensely for Godโ€™s message to spill out through these pages from His heart into yours. Last but not least, I am greatly hoping that the words and ideas within this book will come together and deepen the closeness of your relationship with your loving Savior, Jesus Christ.

Apherisis treatment day this morning at SCCA for Shannon. She is now doing these at a bi-weekly schedule now and has bee...
09/01/2020

Apherisis treatment day this morning at SCCA for Shannon. She is now doing these at a bi-weekly schedule now and has been doing great. What makes this time special is that I get to join her today.

Since we have been together I have tried to attend as many appointments as possible with here. With work we get to balance these with family and friends helping.

So why am I posting this? As caregivers we need to know that it is ok to ask for help. It is ok to know that we can't do everything alone just as our loved one can't do everything alone we all need help. They need a support system just as much as we do.

I just want to thank everyone who is apart of FEARless for being that and so much more for Shannon and our family. All our parents, Janelle, John, Pat, David and so many more. Supporting Shannon through her journey and supporting me being there with her is something we both cherish.

08/04/2020

Extra Corpreql Photopharesis Treatment #3

08/04/2020

Extra Corpreal Photopharesis Treatment #3

07/14/2020

Hey everyone,

Rik here! Just wanted to give you all an update on Shannon. She had her new port placed earlier today and is now home and recovering. We are one step closer to getting treatment going with SCCA. I just wanted to say thanks again for all the support you have shown Shannon.

-Rik

05/17/2020

Where is Motivational Monday? We have been waiting for 3 weeks! Rik! What are you doing?

When I started Motivational Monday, I never had the intentions of keeping one style of engagement going on forever. What I hoped for, was to have it spin off into other weekly posting types. So, with that said, Motivational Monday Season One has ended and will return with a new stretch of posts in the future.
So, whatโ€™s next you ask? Iโ€™d like to start doing a new series of weekly posts involving and engaging caregivers to discuss real topics. Ask questions and get insights into how they handle various situations in the journey they experience with their loved one. If you feel that this is something you would like to participate, please comment down below of send a direct message to FEARless or myself. If you have a topic that you would like to see discussed, please comment down below.

Examples: 1:1 discussion on a topic, Q/A comparisons, Experience sharing, etcโ€ฆ

Thanks,
Rik ๐Ÿ˜Š

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Bellevue, WA
98006

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