10kms for Ben May

19/04/2026

What a fantastic achievement. Vienna marathon done and dusted. Well done cousin Harriet. 👏

We are so grateful for your incredible efforts and dedicating your race to Ben and his chosen organisation 💜💜💜
Ben would be so proud of you. ✨

09/04/2026

𝐂𝐨𝐮𝐬𝐢𝐧 𝐇𝐚𝐫𝐫𝐢𝐞𝐭 𝐩𝐮𝐬𝐡𝐞𝐬 𝐡𝐞𝐫 𝐥𝐢𝐦𝐢𝐭𝐬 𝐟𝐨𝐫 𝐁𝐞𝐧 💜.....Harriet is running her 1ST marathon next weekend in Vienna. She shares...
"I'm running this marathon in honour of my late cousin Ben May. He was the youngest of our clan and taken from us far too soon. He's going to be my inspiration when the going gets tough, especially in those last kms. His incredible athleticism and fitness were admirable, and I hope to channel his mental grit.
Any donations to , Ben's chosen charity, and one he'd begun planning a campaign for before his untimely passing, would be hugely appreciated."
Harriet, we are so grateful to you and wish you all the best for your upcoming challenge. What an inspiration! We know Ben would be so thrilled and proud of your amazing efforts. 🥰💜 Go Harriet.💨
If you would like to support Harriet's efforts, you can donate via the following 🔗
https://givealittle.co.nz/fundraiser/cousin-harriet-pushes-her-limits-for-ben

01/04/2026

THANK YOU!!💜
~ Guys, each and every one of you who took the time to complete your 10kms; each very kind donation continues the plans Ben started…….. there are no words to express how grateful we are for your support. Helping us to honour Ben’s legacy this way means the absolute world to us. 💜

These words from say it all……..”Events like this remind us that no one with epilepsy should have to go it alone – that there’s a community of people who care, who show up, and who want to make a difference. That support is incredibly powerful.
So, thank you all. Your participation …. in honouring Ben’s legacy shows that …..together, we can make a real difference for people living with epilepsy.”💜

28/03/2026

Young and old, we did it for you Ben and for Epilepsy NZ. 💜

28/03/2026

Family & friends, both near and far,doing it for Ben.💜 Appreciate you all. 🥰

28/03/2026

Team work makes the dream work…….. for Ben💫💜

28/03/2026

Friends and family did Ben so proud again this year. Despite the cold wind, the support and love shared in Ben’s memory was tangible.
Big thanks to each and every one of you. It means the world to us…… and more. Our boy 💫🤍would be so thrilled to see all the action today. So grateful for you all. 🥰

26/03/2026

Let’s do this. 🏃🏽‍♂️‍➡️🏃‍♀️🚶🏾‍♀️‍➡️🚶🏻‍♂️‍➡️💜

Honouring Ben by continuing his plans. Raising awareness and funds for his chosen charity, Epilepsy New Zealand.

21/03/2026

🏁𝐂𝐚𝐫𝐫𝐲𝐢𝐧𝐠 𝐁𝐞𝐧’𝐬 𝐕𝐢𝐬𝐢𝐨𝐧 𝐀𝐜𝐫𝐨𝐬𝐬 𝐭𝐡𝐞 𝐅𝐢𝐧𝐢𝐬𝐡 𝐋𝐢𝐧𝐞🏁

Just over a week to go until Saturday, 28th March, and the momentum is building for our 10kms for Ben May.

This day is deeply personal because we aren’t just walking and running in Ben’s memory - we are fulfilling the mission he started. Ben had already begun planning this event with two goals clear in his mind: to raise epilepsy awareness and to support Epilepsy New Zealand , his chosen charity.

Next Saturday, we lace up to finish what Ben started. Every step we take and every dollar raised helps to turn his vision into reality.

🇼​​🇭​​🇾​ ​🇪​​🇻​​🇪​​🇷​​🇾​ ​🇰​​🇮​​🇱​​🇴​​🇲​​🇪​​🇹​​🇪​​🇷​ ​🇲​​🇦​​🇹​​🇹​​🇪​​🇷​​🇸​⦂
Ben saw the need for better epilepsy awareness. By showing up, we are his voice and his momentum.

ʟᴇɢᴀᴄʏ ɪɴ ᴍᴏᴛɪᴏɴ:
This wasn’t just an idea; it was Ben’s plan. Let’s bring the heart and grit he had to that finish line.

Let’s use this final week to get focused. Let’s walk, run and show up for Ben and for everyone impacted by epilepsy. 💜

Every penny raised will make a difference. Let’s make Ben proud.💜💜💜

📍When: March 28th
🔗How to help: link in bio ⬆️

12/03/2026

😟𝐓𝐡𝐞 𝐇𝐢𝐝𝐝𝐞𝐧 𝐋𝐚𝐛𝐨𝐮𝐫 𝐨𝐟 𝐓𝐫𝐲𝐢𝐧𝐠 𝐭𝐨 𝐒𝐭𝐚𝐲 𝐖𝐡𝐨𝐥𝐞

Most people see a steady life - a colleague, a friend, a partner simply “showing up.” What they don’t see is the profound, quiet dictate required to keep that stability from shattering.

Living with epilepsy is an act of constant, internal engineering.
It’s a life governed by:

💊The Chemical Clock: An existence measured in twelve- hour cycles, where a plastic pill tray is the thin line between a normal day and “system reboot.”

🧠The Mental Toll: Navigating the side -effect burden – the brain fog, the fatigue and the tremors that are the non- negotiable price of attempted safety.

💪The Advocacy: The relentless mental fortitude it takes to ensure refills, navigate medical hurdles, and explain the invisible condition to a visible world.

It takes immense grit to trust a body that requires a chemical concoction to stay upright. It takes courage to manage a lifelong medical regimen while refusing to let it define the boundaries of a soul.🪽

To those who carry the weight, your resilience is a feat of strength. Your prescription schedule, a victory.

💜We see the bravery in your quietest moments.💜

05/03/2026

𝐖𝐡𝐲 𝐰𝐞’𝐫𝐞 𝐰𝐚𝐥𝐤𝐢𝐧𝐠/𝐫𝐮𝐧𝐧𝐢𝐧𝐠 𝐚𝐧𝐝 𝐠𝐚𝐭𝐡𝐞𝐫𝐢𝐧𝐠 𝐨𝐧 𝐌𝐚𝐫𝐜𝐡 𝟐𝟖𝐭𝐡……🕊️

We aren’t just looking back; we’re looking forward. 🧠Recent epilepsy breakthroughs in AI-powered wearable monitors and gene-regulation therapies are finally giving us tools to predict and prevent seizures before they even happen.

Science is moving at a pace, fueled by people who refuse to stop fighting.

On March 28th, we’re gathering across the globe in memory of our much-loved Ben. ❤️
He wanted to make a difference, so we’re channelling our love for him 🥰into raising funds that will change lives. He’d be so thrilled.

Every penny raised will make a difference. Let’s make Ben proud.💜💜💜

📍When: March 28th
🔗How to help: link in bio ⬆️