11/27/2025
Alright MAFIA members itโs your chance to shine. We dont ever ask for donations but this one hits different.
PLEASE if you can, donate!
(Comment "LYDIA")
Lydia is a three-year-old from our community in Natchitoches, Louisiana. Sheโs a happy toddler who loves clapping, playing with her big sister, and chasing chickens in the yard. Life was normal for her parents until last April.
At 18 months, Lydia was diagnosed with Sanfilippo Syndrome Type B โ a rare disease often called childhood Alzheimerโs. Before that, she hit every milestone. The only signs were ear infections, belly issues, and bad sleep.
Then her grandma saw a TikTok of another little girl with Sanfilippo who looked just like her. Her parents took that video and photos to their pediatrician. Heโd never seen a case, but ordered genetic testing. A week later, it came back positive.
Sanfilippo is a terminal brain disease. Kids slowly lose the ability to talk, walk, and eat. They unlearn everything theyโve learned, and most only live into their teen years. Doctors told them, โThereโs no cure. Take her home and love her.โ
Instead, they decided to fight.
Now this family, Cure Sanfilippo Foundation, and 14 other families are racing to fund treatment through a clinical trial for 15 kids, including Lydia: six million dollars total, with 3.8 million due by December 1st, 2025. Theyโve already raised 3.2 million.
And those beautiful thick eyebrows everyone compliments? Along with her constant ear infections, bloated little belly, and sleepless nights, they were some of the early signs that quietly gave away the diagnosis.
โ ๏ธ ๐๐ณ ๐๐ผ๐ ๐ฐ๐ฎ๐ปโ๐ ๐ด๐ถ๐๐ฒ, ๐น๐ถ๐ธ๐ถ๐ป๐ด, ๐ฐ๐ผ๐บ๐บ๐ฒ๐ป๐๐ถ๐ป๐ด ๐ผ๐ป, ๐ฎ๐ป๐ฑ ๐๐ต๐ฎ๐ฟ๐ถ๐ป๐ด ๐๐ต๐ถ๐ ๐ด๐ผ๐ฒ๐ ๐ฎ ๐น๐ผ๐ป๐ด ๐๐ฎ๐
THANK YOU ๐
Here is the link to donate. Please please consider making a donation to this precious angel. https://gofund.me/2350ac2b1