Tribute to Jared Kelly Digby

Tribute to Jared Kelly Digby Jared Kelly Digby, 11/2/1982 - 4/29/2012 CURED of Ataxia Telangiectasia and running in Heaven because he CAN!

Jared Kelly Digby, 11/2/1982 - 4/29/2012
CURED of Ataxia Telangiectasia and running in Heaven because he CAN! In his twenty-nine years of life, Jared Digby touched the lives of many people from all across the globe. His Mother, Pamela Digby has asked that we reach out to those whose lives he touched and ask them to share their memories of him. This might include stories, statements, recollections,

photos or whatever you feel comfortable sharing. Pam would like this to include when and where you met Jared, i.e., school, Church, internet, friends...friends of friends, etc. Please tell us where you are from so we can see how far Jared's inspiration reached. These items will be put together in a booklet for his family and be present at his funeral service. This booklet will also be carried to Walt Disney World in January 2013 as Pam will join the A-T Cure Team in Jared's memory during Marathon Weekend.

03/08/2024
02/29/2024

atcp.org/TeamJared

11/28/2023

Dear Friends of the A-T Children's Project,

It’s , and anonymous donors have joined together to match the first $60,000 in donations we receive! Please donate today to take advantage of this match and to help us keep our momentum as we head into 2024.

We’re more driven than ever to capitalize on recent discoveries and advance therapies for A-T. With your help, we can continue to "punch above our weight" as an organization. Here are a few examples of what we’re intensely focused on these days:

•expanding collaborations with academic, industry and government researchers around the world to aggressively pursue new gene replacement and gene editing approaches

•harnessing large-scale robotics and machine learning technologies to test novel chemical compounds as well as marketed drugs to identify new starting points and "shortcuts" to treatments for A-T

•recruiting A-T families to participate in upcoming clinical studies and drug trials

•increasing our ability to track and measure A-T’s neurological decline by expanding our initiative to discover biomarkers using blood samples and wearable devices

•testing a new brain stimulation device that may reduce involuntary muscle contractions sometimes experienced in A-T

The road to find cures for diseases can be frustratingly long and difficult, and A-T is no exception. But, over the years, A-T families and friends have worked incessantly – raising funds, hosting events, participating in studies – and we are now closer than ever to finding effective and meaningful treatments. In the coming year, we should see several clinical studies and trials, each with the potential to make a difference.

By making a matched donation between now and Friday (December 1st), you will help us keep up the momentum!

All the best,

Brad Margus

Founder, Volunteer Board Chair and A-T Dad

Donate today at atcp.org/givingtuesday

🌶TUESDAY 11/21/2023, please EAT at Chili's Grill & Bar in Forney.  Just stop by   to EAT THERE or take TO-GO and show th...
11/18/2023

🌶TUESDAY 11/21/2023, please EAT at Chili's Grill & Bar in Forney. Just stop by to EAT THERE or take TO-GO and show them this post or mention to your server and a donation will be made to the A-T Children's Project to , a rare childhood disease that is brutal and progressive. Thank you!

05/04/2021
I’m not gonna lie. It’s tough.  I miss my boy. Jared Kelly Digby
07/17/2020

I’m not gonna lie. It’s tough. I miss my boy. Jared Kelly Digby

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Dallas, TX

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